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Forum Publication of potentially sensitive data

The Forum Publication of potentially sensitive data brings together experts from different institutions to discuss how potentially sensitive data can be released for reuse.

Veranstaltungsdaten

Many scientists work with highly sensitive data according to Art. 9 DSGVO (https://dsgvo-gesetz.de/art-9-dsgvo/), for example brain scan data. Publication of such data is only possible in anonymized form, but some researchers feel uncomfortable with publishing them at all because of the complex rules and risks associated with the handling of sensitive data. Especially with images of the brain, it may be possible to identify the person despite anonymization (https://doi.org/10.1016/j.ynirp.2021.100053). At the same time, the open science movement has many supporters willing to implement open science practices with the goal of embracing more transparent, trustworthy, robust scientific methods in their own research (https://doi.org/10.1026/0033-3042/a000386), also at the University of Marburg (https://doi.org/10.1016/j.neuron.2021.04.001).

How can this balancing act succeed? Which options for data publication of potentially sensitive data exist? What needs to be considered - where to find support - and what does the university say?

We will discuss these questions together in the Forum Publication of potentially sensitive data on June 13 from 10 a.m. to 1 p.m. (online) and take a quick look at the Open Science Framework (https://osf.io/). Experts from different institutions will explain their point of view and join the discussion. We are looking forward to statements from: Lydia Riedl (PostDoc at the Clinic of Psychiatry and Psychotherapy, TNM Lab, and member of the Open Science Initiative University Marburg), Benjamin de Haas (Individual Perception, https://www.individual-perception.com/people), Dr. Harald Kusch (NFDI4Health, https://www.nfdi4health.de/ueber-uns/arbeitsbereiche/ta6-privacy-data-access-in-concert.html), Dr. Petra Ritter (NFDI4Neuroscience, https://nfdi-neuro.de/) and Dr. Birte Cordes (Service Center eResearch, https://uni-marburg.de/eresearch). You are welcome to participate in the discussion!

Schedule

1. Welcome and introduction (Lydia Riedl, PostDoc at the Clinic of Psychiatry and Psychotherapy, TNM Lab, and member of the Open Science Initiative University Marburg)
2. Quick look at the Open Science Framework (Lydia Riedl)
3. Point of view of a neuroscientist (Benjamin de Haas, Individual Perception, https://www.individual-perception.com/people)
4. Point of view of NFDI4Health (Dr. Harald Kusch, NFDI4Health, https://www.nfdi4health.de/ueber-uns/arbeitsbereiche/ta6-privacy-data-access-in-concert.html)
5. Point of view of NFDI4Neuroscience (Dr. Petra Ritter, NFDI4Neuroscience, https://nfdi-neuro.de/)
6. Offers of the Service Center eResearch; point of view of the university; data protection (Dr. Birte Cordes, Service Center eResearch, https://uni-marburg.de/eresearch)
-- Short break --
7. Discussion

Registration and access

This is an online event. Please fill in the registration form. The access link will be sent to you immediately after submitting the form. The registration remains open until the Forum is finished, so you can join in anytime.