Main Content

Relevance of the dimensions of quality of life and the influence of socio-demographic factors on the general quality of life of people with Parkinson's disease

Description

Measuring quality of life is an important endpoint for clinical care and research in a chronic disease such as PD. For example, QoL is one of the most commonly collected parameters when evaluating new models of care, and achieving the highest possible QoL is often the first priority when planning treatment. Studies show that people with Parkinson's disease (PD) do not only experience and rate quality of life in relation to their disease. However, currently established questionnaires, such as the PDQ-39, focus heavily on this experience of the disease and ignore other (quality-of-life) aspects. A lack of descriptive models is discussed as a reason for this: It is currently unclear how to describe quality of life for people with Parkinson's disease.
The aim of this project is to develop a holistic understanding of the quality of life of people with Parkinson's disease in Germany. To this end, a questionnaire will be developed that builds on the results of previous studies by the working group. In addition to disease characteristics and socio-demographic factors, the questionnaire will assess the subjective relevance of different dimensions of quality of life (e.g. experience of social contacts or mobility). The aim is to answer the following two research questions

• Which dimensions of quality of life are particularly relevant for people with Parkinson's disease and which are not?
• Are there differences in assessment between patient groups with different socio-demographic characteristics?

Contact

Mrs Leonie Moormann, Marlena van Munster (coordination of study)
Telefone: 06421/58 - 65299
Telefax: 06421/58 - 67055
marlena.vanmunster@staff.*

* please add "uni-marburg.de" for a full email-address.